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butterfly skin

Last month
February 2025
rare disease day
Dublin schoolgirl with rare skin disease prepares for move to secondary school
23 Feb
25
Last year
2024
Dublin Marathon
Colin Farrell finishes marathon with Emma Fogarty as fundraiser for EB raises over €700,000
27 Oct 2024
5
Dublin Marathon
Colin Farrell finishes marathon with Emma Fogarty as fundraiser for EB raises over €700,000
27 Oct 2024
29
Epidermolysis Bullosa
'It's inhumane': Colin Farrell criticises lack of funding for people living with rare skin condition
18 Oct 2024
38
All time
butterfly skin
UCD researchers developing ‘life changing’ treatment for painful skin condition
4 Jul 2021
7
butterfly children
'There are days she's screaming so much we're all in tears' - parents of 'butterfly skin' children appeal to Dáil for help
26 Oct 2017
25
Opinion
Column: I live with the constant pain of 'Butterfly Skin'
Emma Fogarty
30 Jul 2013
15
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